{"id":20,"date":"2005-01-31T14:55:18","date_gmt":"2005-01-31T14:55:18","guid":{"rendered":"http:\/\/ladle\/wordpress\/?p=20"},"modified":"2005-01-31T14:55:18","modified_gmt":"2005-01-31T14:55:18","slug":"two_songs_out_o","status":"publish","type":"post","link":"https:\/\/fumblings.com\/weblog\/?p=20","title":{"rendered":"Out of the swing of the sea"},"content":{"rendered":"

So, I did come down sick again: maybe some explanation for this swing down which is continuing. I’ll spare gruesome details, but it’s gastric<\/em> and has been continuing for 3 days, so I’m losing yet more weight. And it may have been my own stupid fault. My new private Doctor who specialises in CFS\/ME, Dr Myhill<\/a> sent me a confection of minerals in powder form to dissolve in water (tastes like what I imagine washing up water tastes like: I haven’t tried), and, not finding the specified “scoop”, I thought “coffee scoops” and doled myself out a soup spoon full on Thursday, to immediate gastric reaction. I’m told my body may be in shock mode now. We found the scoop today at the bottom of the powder – it’s like a lilliputian’s teaspoon.
\nThe result (if that’s the explanation) is feeling very sick, tired and anxious and stuck in bed. But I’ve had repeated gastric episodes of a yucky variety in the last six months: the first coinciding with my loss of hearing and cochlea damage. I hope it’s understandable that I’m anxious right now about more “idiopathic” damage and deafness, and doesn’t signal a descent into being yet more pathetic.
\nSo this has to be a snatch of an entry, and I’ll use others to provide content. For those who don’t know the (agonising, ridiculous, soul-destroying) state of CFS\/ME healthcare in the UK, which I’ll still have to put off for another time, please please just quickly look at my own private doctor’s take on the “organic illness vs. you’ve convinced yourself you’re ill<\/a>” debate. I like a straight-talking doctor:<\/p>\n

CFS Psychological or Physical?
\nThis seemed such a stupid question that I never bothered to consider it.\n<\/p><\/blockquote>\n

Also her article on “Dealing with Doctors<\/a>“:<\/p>\n

Most doctors do not distinguish, indeed do not want to distinguish, between fatigue, frustration, sadness and depression. If you burst into tears with frustration at the total lack of understanding, that merely reinforces the universal diagnosis of depression.<\/p><\/blockquote>\n

Because of her attitude, I’m sticking with her methods for at least 6-9 months. She’s a breath of fresh air, after more than a decade of UK doctors looking like a deer in headlights when you mention M.E. She’s very nutrition-based, but she’s also ordered a lot of tests (vitamin D deficiency for mood problems, melatonin levels, parasitology, and something scary in case my hearing loss was a tiny stroke, and a third thyroid test) which the NHS have told me they won’t pay for – so I have to. I’ll be taking vitamin B12 shots weekly soon, which is first-aid commonplace treatment in other countries for this condition, and unspeakably unorthodox hippy nonsense to UK general practioners. Allow me a brief outburst.
\n\"job.jpg\"<\/p>\n

All of you are worthless physicians.
\nIf you would only keep silent,
\nthat would be your wisdom!
\n– Job 13<\/em><\/p><\/blockquote>\n

Joni Mitchell says it best in The Sire of Sorrow (Job’s Sad Song)<\/a>.
\nAnyway enough. I’m sitting in bed, trying to expose my ear to noise, as instructed, and trying not to worry. Two lovely friends held back the borders of my anxiety yesterday by just talking to me<\/em> on the internet. Thank you thank you.
\nI’ll have to stop, as rest for CFS\/ME patients is supposed to not involve laptops, TVs or even music but, just for me, another song of longing based on verse from a long time ago, from a band who have saved me time and time again. Just a deep deep longing to be out of the “swing of the sea” for a little, to get some rest, physically and emotionally.<\/p>\n

\n

\nI have desired to go,
\noh I have asked to go
\nwhere a few lilies blow,
\nto fields where flies
\nno sharp and sided hail
\nand springs not fail,
\nand springs not fail.\n<\/p>\n

\nAnd I have asked to be,
\noh I have asked to be
\nout of the swing of the sea,
\nwhere the green swell
\nis in the heavens dumb,
\nand no storms come,
\nand no storms come.\n<\/p>\n

\n– The Innocence Mission – No Storms Come<\/em> – from Gerard Manley Hopkins – Heaven Haven<\/a>\n<\/p>\n<\/blockquote>\n

And finally, Hope’s lesson for Giant Despair<\/a>.<\/p>\n

\n

And let us consider, again, that all the law is not in the hand of Giant Despair. Others, so far as I can understand, have been taken by him, as well as we; and yet have escaped out of his hand.
\n\"giantdespair.jpeg\"
\nWho knows, but the God that made the world may cause that Giant Despair may die? or that, at some time or other, he may forget to lock us in? or that he may, in a short time, have another of his fits before us, and may lose the use of his limbs? and if ever that should come to pass again, for my part, I am resolved to pluck up the heart of a man, and to try my utmost to get from under his hand.
\nI was a fool that I did not try to do it before; but, however, my brother, let us be patient, and endure a while. The time may come that may give us a happy release; but let us not be our own murderers. With these words Hopeful at present did moderate the mind of his brother; so they continued together (in the dark) that day, in their sad and doleful condition.<\/p>\n

\nHopeful comforts Christian<\/em> – from The Pilgrim’s Progress<\/a><\/p>\n<\/blockquote>\n","protected":false},"excerpt":{"rendered":"

So, I did come down sick again: maybe some explanation for this swing down which is continuing. I’ll spare gruesome details, but it’s gastric and has been continuing for 3 days, so I’m losing yet more weight. And it may have been my own stupid fault. My new private Doctor who specialises in CFS\/ME, Dr … Continue reading Out of the swing of the sea<\/span> →<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7,13],"tags":[],"class_list":["post-20","post","type-post","status-publish","format-standard","hentry","category-illness","category-words"],"_links":{"self":[{"href":"https:\/\/fumblings.com\/weblog\/index.php?rest_route=\/wp\/v2\/posts\/20","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/fumblings.com\/weblog\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/fumblings.com\/weblog\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/fumblings.com\/weblog\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/fumblings.com\/weblog\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=20"}],"version-history":[{"count":0,"href":"https:\/\/fumblings.com\/weblog\/index.php?rest_route=\/wp\/v2\/posts\/20\/revisions"}],"wp:attachment":[{"href":"https:\/\/fumblings.com\/weblog\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=20"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/fumblings.com\/weblog\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=20"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/fumblings.com\/weblog\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=20"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}